Super Rowdey, a courageous and joyful TinySuperhero, embarked on a remarkable journey from the moment his parents learned of his diagnosis of spina bifida during the 20-week anatomy ultrasound. With his infectious laughter and unwavering spirit, Super Rowdey has shown the world the true power of embracing life's challenges with an open heart and a contagious smile.
From the start, Super Rowdey's journey was filled with moments that showcased his incredible resilience. At just 25 weeks, he underwent fetal surgery to repair the defect in his back, and at 32 weeks, he made his early entrance into the world, spending 28 days in the NICU. Determined to overcome any obstacle, he waited patiently for his back to heal before embarking on a four-hour journey to his new home.
Super Rowdey's journey has been filled with physical therapy twice a week and occupational therapy once a week, where he tirelessly works to achieve every milestone. Despite the extra effort required, he faces each challenge head-on with unwavering determination and an ever-present smile. Throughout their journey, the Ronald McDonald House has provided a supportive second family, offering comfort and love during their visits to Cincinnati.
In January, Super Rowdey received his first AFOs (ankle-foot orthoses), marking an important step toward walking independently. While walking may not be his favorite activity, Super Rowdey understands the importance of perseverance. In the spring, his journey reached a significant milestone as he was released from his neurosurgeon for monitoring of hydrocephalus, signifying a triumph over previous obstacles.
Super Rowdey's journey began before his birth with a courageous fetal surgery that his mom believes has changed his life for the better. Though he doesn't remember the procedure, Super Rowdey's impact on those around him is undeniable. His parents encourage other candidates for fetal surgery to seize the opportunity, knowing the transformative power it holds.
Super Rowdey has become known as the community baby, capturing the hearts of countless individuals who prayed for him even before his arrival. Through Facebook and Instagram, his story reaches families who may face similar diagnoses, offering hope and inspiration. Super Rowdey's dad, who coaches his brother's baseball team, has introduced him to the world of baseball, where he has formed friendships with players, coaches, and even umpires. His brother, Austin, remains his best friend and teacher, sharing moments of joy and knowledge.
Overcoming low muscle tone in his legs has been one of Super Rowdey's biggest challenges. Despite medical expectations, he defies the odds by exhibiting feeling and mobility beyond what was thought possible. Since he was only three months old, he has diligently worked to strengthen his body, achieving milestones like crawling, pulling up and side-stepping. Super Rowdey's determination and problem-solving skills continue to amaze those around him.
Super Rowdey finds joy in the simple pleasures of life, from baseball and Fisher Price Linkamils to Finding Nemo and the TV show Scorpion. His happiness and excitement are contagious, serving as a reminder that even in the face of adversity, joy can prevail. Super Rowdey finds comfort in his cherished Warmies and beloved blanket, and the presence of his pacifier and the love of his family offer solace during challenging times.
Looking ahead, Super Rowdey's journey includes upcoming clinics and a full spine MRI scheduled for September. Monitoring a cyst near his spine will be a priority, with the possibility of surgical intervention if necessary. With his strength and stability in other areas, there is hope for a positive outcome.
Super Rowdey's indomitable spirit and resilience foreshadow the remarkable impact he will have on the world. In less than two years, he has faced challenges that many adults have never encountered. With Super Rowdey leading the way, his family eagerly anticipates the incredible journey that lies ahead. His courage, joy, and determination will undoubtedly leave an indelible mark on the world, inspiring others to embrace life's adventures with unwavering courage and a heart full of joy.
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